Today, the stomach problems seem to be lessening. At least I do not have to go every hour or so. Now it's only every time I eat something.
But it worried me enough to email my doctor and now I have to record everything I eat and my weight. The last is a little hard to do since I do not own a weighing machine. But I do know I have lost weight this past week even though I might have made up some of it just today!
Bowel movements - not as disastrous at 7/10.
Dermatitis check - More lesions and rashes appeared on my face, neck and ears again. They seem to be getting worse but it could be because I started the lesser dosage of predisnone last Wednesday. It is a bit unbearable though as I am waking up in the middle of the night scratching as well as rushing to go to the loo now.
Additionally a dark, angry red bruise appeared on my inner elbow two days ago. At first I thought I had not scrubbed properly in the shower and went it with vigour. It remained and then I started getting worried. I asked my dr about it and she says it does appear in patients taking prolonged dosages of steroids due to "unrecognised trauma". What the hell does that mean? I like my dr as she seems like a nice person but she really likes to hear herself speak in medical terms to impress herself. It certainly does not impress her patients as we just think she's talking out of her arse and she has total disconnect with us! Just speak English, goddamit!
I sent her an email back to ask what exactly is "unrecognised trauma". We'll see what she comes back with. This is my main problem with her. We have basic communications problems. I speak human. She speaks "I paid a lot of money to utter rubbish to impress myself".
Vision check - The swirling lights seems less today and this could be because the migraines eased a bit the last two days.
Pain check - 7/10. The stomach still the crux of the pain but my neck. back and left arm have started acting up a bit today. Sigh,when one stops, the others have to compensate.
Hydration - Getting a little better since I seem to be able to drink water and tea without having to go to the loo for ages.
Mystery sweet taste in mouth check - still there. Darn, I forgot to ask the dr about it. Oh well, next time.
Energy level - Slightly better too now that I am getting a bit more sleep without having to wake up constantly. So it's about 5/10. I'm still quite tired and the thought to having to go out scares me. In case I cannot find a loo in time and my eyes and head still feel so heavy.
Respiration check - Not sure what is going on as it's not asthma but been feeling a little hard of breath these two nights. Not enough to worry me but enough to irritate. So I am going to burn me some eucalyptus and peppermint oils tonight so I can sleep better.
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